Today has been more of the same...
We still have not been given any results from the CT scan. The nurse practioner wanted to talk with neurology first. Hopefully this evening we will know something.
He is looking yellow from his bilirubin being to high. Still no confirmation on what is going on with his liver aside from being on TPN to long. Hopefully now that the TPN is gone his liver can heal over time.
As far as feeding goes, Memphis is now on continuous feeds. So he is getting 20cc every hour for three hours. This adds up to the same as he was getting, 60cc every three hours, he is just getting it slower. This continuous feeding has seemed to work much better for Memphis. He has only thrown up once today where as before he was throwing up some after every feeding. His stomach just could not handle that much milk that fast. I have mentioned before that CDH babies have bad re-flux issues. We knew that feeding would be a long hard road. We are just thankful that his stomach can tolerate that much milk most babies don't even tolerate milk.
OT will come today and work on oral stimulation using taste.
Memphis is doing pretty good as far as withdrawals go. He was taken completly off fentanyl yesterday evening and put on methadone. His withdrawal scores were on the high side last night but looking better this morning. The nurse said that he did not sleep at all last night and he has been in and out of sleep all day today. But he hasn't been agitated or upset, just not sleeping.
He will be getting his first round of immunizations either today or tomorrow. This is exciting because this is something that a healthy baby gets to do!
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