We are now 72 hours off of ECMO and still stable!
Memphis has been staying very sedated today to keep him from waking up and being agitated. Being agitated can not only mess up his oxygenation numbers and cause him to shunt but it also messes up the dialysis machine and causes it not to work properly. Yesterday, Memphis spent alot of time waking up and being very upset and angry with the world. There was no calming him down without sedation medicine. The sedation medicine is now on a drip rather than just "when he needs it". Every time he woke he would scream and cry -- We can't wait to actually hear him cry. It is awful to sit and watch him cry and not hear a sound. Although its great to see he is having reactions and emotions. Needless to say, he is not a happy camper when awake. I wouldn't be either.
Last night he had two drops of pee in his diaper! Twice as much as last night still not enough. The nephrologist came by today, they had taken some x-rays of Memphis's kidneys to make sure everything looked ok last Friday. He said that there are no blockages/blood clots in the kidneys and they look fine. This was great news. Now it's all up to Memphis' body to get them going.
The ventilator percent o2 concentrate has been weaned to 63%.
Still no definite date for repair surgery. Hopefully, we will get a date on Monday when we see the surgeon.
Thank you to everyone that has been keeping Memphis in their thoughts. He wouldn't have made it this far with out you. You all have helped him to want to be here with us.
Cheers for every minute, every hour, every day that your baby is making progress. Your updates are so informative, and I thank you for letting me, letting us follow Memphis each day.
ReplyDeleteAnne, from New Hampshire