The last few days have been crazy. Memphis has been doing well other than the spitting up he has been doing. It really seems like its uncomfortable for him. We are actively trying to fix it but nothing seems to be really working.
We had our first log distance outing yesterday, to hanger orthotics to get Memphis assessed for a helmet or cranial band. The ride down there was great. Memphis and Braden both were great. Memphis even took a nap on the way down. We had a little bit of a wait when we got there, in which Memphis got restless. After getting his head scanned, during which he was a trooper, we found that he has a severe deformity in the symmetry of his head. A difference of 15 millimeters. They got all of the measurements they needed, and are ordering the band this upcoming week. Hopefully this will reform his skull.
The ride back was not the quiet ride like we had going. He fussed and refused to sleep on the way back home.
After we got back home, dad went to the pharmacy to pick up a prescription of reglan, to hopefully help his retching. After giving him a dose of it we found out it wasn't the solution that he needed. He reacted to it negatively, almost what you might call allergically. After dealing with this for an hour or so he finally made it to sleep. He probably had the most restless night of sleep that he has ever had. Needless to say, NO MORE REGLAN. I've got a message into the nurse to see if there is anything else we can give him, but no response yet. Hopefully we can get him some relief soon.
he has been ok this morning. I think he has just been worn out from the day before and little sleep. We hope for good naps, and solid rest today.
We also received his genetic testing results. As many of you know, it was reported to us that Memphis had a chromosomal abnormality, and they wanted to test both parents to see if either of us had the same abnormality. After we both got tested, Michelle is positive for the chromosomal duplication. This proves that the abnormality was NOT the cause of CDH. Since mom is fine with it, then the abnormality is normal, as ironic as that is.
Poor Memphis. Sounds like a hard day for him and the parents!!
ReplyDeleteI had a friend that got food poisoning and the doctor gave her Reglan. She got really sick from it. It is an intestinal stimulant and if you are already cramping it is the worst thing for you because it sends your intestines into severe spasming.
ReplyDeleteI guess Memphis is on some kind of acid reducer - like Tagamet??
Poor little guy. Hopefully he will quickly outgrow some of these problems.
Yes he is on Omeprazole for stomach acid
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