9/11/2011 He is still having issues with seizures. They are more controlled for sure, but they are still there. The phenobarbital seems to have finally evened out. Now you can hardly see them unless you know he is doing it, his eyes open and shut and then his right arm starts twitching. The only difference between this and just twitching seems to be the fact that touching him doesn't stop them. The nurses all say that this is something typical for children that have been sick for a period of time, and they feel its more environmentally stimulated than brain related.
His lung x-ray show some oxygen in the right lung, although it is just a small bit. This is a good start, and if he keeps on losing weight he should continue on this trend. He lost 5 grams last night, which is not even hardly enough to mention though.
It is hard watching him laying there twitching, so helplessly, but it is equally as hard looking at him lay there so out of it. He is on three different things to keep him relaxed (phenobarbital, fentanyl. lorazepam), so even when he opens his eyes, there is little behind them. Friday, he was so coherent seeming. He had his eyes open looking at us, switching between Michelle and I. Responding to us talking and showing us books, being so calm and interested. These last two days, there's been nothing. His eyes seem so sad. I will keep everybody updated the best i can.
Just wanted to let you guys know that me and Tommy are praying for Memphis and you guys as well. I can only imagine the toll this takes on a parent mentally and physically. If we can do ANYTHING to help, please let us know!!!! Jeremy has our #'s.
ReplyDeleteMelanie and Tommy