The past week or so has been crazy! With Rowan going to fifth grade, Braden going to Kindergarten. It has been wild. We're hoping Braden does well, but assume there are going to be some bumps in the road while he learns the rules. Michelle is definitely ready, but I'm sure she is sad to see the kiddos growing up so rapidly. All of the school supplies have been bought, Braden has met his teacher, and Rowan's orientation is later this week. They seem happy with their teachers. That's all we can ask.
Memphis has been growing up too. He is constantly playing! Jumping, falling and wanting to be a big kid. The one downfall of this is that he doesn't want to be held down. Come feeding time, he is too busy to sit there and eat. Speaking of eating, he has decided that he doesn't need to eat at night. This is good and bad. During the night while he is attached to the pump, he decides to disconnect the line. Therefore, food goes everywhere, and his stomach ends up emptying all over the bed. Not a pretty sight or smell! Mommy has been trying hard to get all the food he needs over the day in his belly before he goes to bed, with good success. It has pushed his bed time back a little, but Memphis is ok with that! No more stinky, wet baby in the morning anymore.
His language skills are growing everyday. He still shows very little interest in talking, but he has developed a few more words. Thank you and Thunder are some new ones. He basically just walks around grunting, signing, and saying "mommy, daddy" all the time. We love it. He is working super hard to get there, and so are we.
His eating has come a long way. He no longer turns away food! He doesn't swallow it, but he doesn't turn it away either. He loves his water though, especially after a hot day playing outside. We took him along with us while we played tennis, and afterwards he couldn't get enough water.
His kidney doctor has officially taken him off of blood pressure medicine now! His blood pressure is now normal. The doctor only wants to see him once a year now, just to make sure his kidneys are growing. There are a percentage of children with kidney damage that their kidneys don't develop right. Just another worry, but our little guy isn't worried. :)
His second birthday is coming up this week. We are so excited! Thanks to everyone that follows our little man and has thought about him in his tough times.
Chris....
ReplyDeleteMemphis!! You little stinker!! Disconnecting your feeding tube line!! now, I imagine that you are so very pleased with yourself!! ;)
Memphis!! You are no longer refusing food!! Good boy!! And you are drinking water!! I have read of another CDH boy, who--if memory serves me correctly--struggled with consuming liquids. Keep it up, Memphis!! ;-D
His blood pressure level is now normal?! Well, that is wonderful news!! I am praying for his kidneys to develop.... ;)
--Raelyn
Hi!! I created another Blog today--just for diverse Writing Projects!!--check it out at this address, if you would like!! ;)
ReplyDeletehttp://writing--projects.blogspot.com/ .
--Raelyn
Chris....
ReplyDeleteIt has been one month since you last posted on this Blog!! I am missing Memphis, my Kindred Spirit CDH Buddy!! How is he doing? Staying well and healthy, I hope!! I personally just recovered from a chest cold--with asthma--it was not fun!! But I survived!! ;)
--Raelyn
Chris....
ReplyDeleteIt has been two months since you last posted on this Blog!! I am missing Memphis, my Kindred Spirit CDH Buddy!! How is he doing? I am also missing his siblings!! And you!! ;)
--Raelyn
Chris....
ReplyDeleteHappy Halloween!! ;-O
--Raelyn
Chris....
ReplyDeleteIt has been three months since you last posted on this Blog!! I am missing Memphis, my Kindred Spirit CDH Buddy!! And his siblings!! Are you excited about Thanksgiving? It is two weeks away!! ;)
--Raelyn
Chris, Memphis and family....
ReplyDeleteHappy Thanksgiving, Friends!! ;)
--Raelyn
Chris....
ReplyDeleteIt has been well over four months since you last posted on this Blog!! I am missing Memphis, my Kindred Spirit CDH Buddy!! Christmas is one week away!! My goodness!! Are you ready? ;)
--Raelyn
Chris, Memphis and family....
ReplyDeleteJust stopping by to wish you a Merry Christmas!! ;)
--Raelyn
I just posted a fictional children's story about this character who was born with CDH on my Blog, "Minuscule is good!". { http://writing--projects.blogspot.com/ } Check it out if you would like!! And maybe leave a comment so I know you visited? Raising CDH awareness with something I can do.... Writing!! I hope you enjoy it!! ;)
ReplyDelete--Raelyn