Tuesday, March 27, 2012

Home Again!

So as you all know, we were hospitalized a few weeks ago. We went up to Children's Hospital on a Wednesday and after MANY tests, an IV, no food, and two very stressed out parents later they finally released us on Friday afternoon. Mom and Dad pushed very hard for us to go home as soon as possible. They placed us on the Pulmonary Distress floor. On this floor there was a case of RSV, Flu A, and Metapheumonia; these were just the three we knew of. We were in the war zone for Memphis. We were sent home on oxygen and told that Memphis probably had some sort of cold and he just needed a boost of oxygen to get through it. The doctor said that a typical person will get a cold and it lasts anywhere from seven to ten days. With Memphis and his fragile lungs it could take up to a month or longer for him to fight off a cold. It is now two weeks later and Memphis is still on oxygen but doing much better.

Memphis saw his GI doctor for the first time yesterday. He was very impressed with our little man, he said his growth looks great. He did change a few medicines around as we are still tweaking to help with the reflux. The doctor is pushing for us to get into a feeding clinic -- which we have been trying to do for weeks now with very little success. There are so many hoops that have to be jumped through thanks to insurance before things can get done. Because our family Dr. is not a Medicaid provider we now have to find another pediatrician that is a medicaid provider in order to get a EPSDT screening which is basically a WELL-Child checkup before we can get an appointment to the feeding clinic. Geesh...

Speaking of feeding, Mom got Memphis to take almost 2 teaspoons of Oatmeal yesterday!! Of course it took 30mins to get everything down and yes some was on his face, chin, and basically all over but a feat just the same.

Memphis has his Orthopedic (Helmet) appointment tomorrow morning. At this appointment, the Dr. will do another head scan much like he did in the beginning to see how much change has occurred. We are of course hoping for a big change and not much longer with a helmet.

Once again, sorry our posts are not as often as they should be.... We are always saying we need to post and then things come up and we get sidetracked :-(

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