Memphis has spent most of the day screaming and crying today. Before this fundo and gtube, Memphis was not a super fussy baby, but now he cries all day in pain and tired. It's one of those cries that no amount of consoling will help. Mom rocks him till he cries himself to sleep :-(. I hope it doesn't take too long to get his tummy stretched out and used to food.
We saw the genetics doc today, all CDH babies get genetics testing done because nobody really knows what causes it. The test showed that Memphis has a unidentified chromosomal abnormality -- it could be nothing or something, the doctors don't know yet. Because of this, mom and dad will get blood drawn and tested. If mom or dad have the same abnormal chromosome then more than likely it will be nothing to worry about for Memphis seeing as both mom and dad are fine. If both mom and dad don't have this abnormality than the next steps will be taken to figure out what it means. Add this to the brain damage, the poor little man can't catch a break.
Memphis was put back on the blood pressure med today. They tried him for two weeks without it and his blood pressure kept creeping higher and higher. The renal doctors are also wanting to get some tests done to make sure there are no clots in the kidneys causing high blood pressure.
What a little trooper, everyday brings great challenges
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